Journaling The Body: Prompts for Chronic Illness

BY LISA MARIE BASILE

I live with #ankylosingspondylitis, so I live with daily pain and immobility. I’m also a patient advocate, so I realize how much of an emotional toll managing chronic illness — including dynamic disabilities, inflammatory diseases, or mental health issues — can take. Here are some of the journal prompts based I’ve been using in my journaling practice. I want you to know that you’re not alone.

There are SO many studies in clinical journals proving the beneficial psychological and even physiological effects of expressive writing. I’ve known writing has the capacity to change us since…forever, but science does offer some explanation. Our bodies change when we make space for our feelings.

When we hold our feelings in, it can devastate our bodies (cortisol build-up, for one, is a real issue) and our psyches. It is especially isolating to live with a chronic illness; suffering day to day without people truly understanding can take a toll on you. This can cause greater anxiety and stress which cyclically leads back into pain and worsening health. Your journal is a place for your truth. Take advantage of it. Let the shadows out and embrace joy, as well. It is not a solution nor a cure, but it is its own type of medicine.

Think of writing as one powerful tool in your self-care arsenal. It’s not a quick fix. It’s not a miracle — but it holds a mirror up to who we are, and can help us find autonomy in the experience. Follow my transformative writing page at RITUAL POETICA.

A Guide For Witches and Writers: "The Magical Writing Grimoire"

What Is The Magical Writing Grimoire? Is it for witches or writers — or both?

The Magical Writing Grimoire is a book of inclusive and accessible rituals and writing prompts for anyone who feels called to using words as a source of healing, empowerment, joy, generativity, and self-exploration. It is designed to integrate ritualistic living and to incorporate sacredness into our lives in meaningful and easy ways.

It’s for witches and non-witches (including people with secular beliefs, like myself), although of course it’s heavily based off the archetype of the witch: The witch, to me, is strong, rebellious, empowered, empathic, and bold as fuck. The witch is also conscious — of the self and others and the earth. So, it works heavily with archetypes and symbols, but it invites people who have specific beliefs to incorporate their beliefs into the work.

Really, the book is about tapping into and using your own power, your own voice, your own ideas.

It’s for writers and non-writers — anyone who is interested in the sacred, beautiful power of poetry or journaling or letter-writing, or timing writing practices to nature’s ebb and flow.

It also focuses heavily on shadow work — or unearthing the silenced, dark, shadowy parts of the self.

What will readers find within its pages?

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Lots of rituals, lots of writing prompts, meditations, quotes from the most inspirational and wonderful people and writers, poems I wrote myself, glimpses into my personal life, and so much more. Plus, it’s really beautifully illustrated.

What is the inspiration behind The Magical Writing Grimoire?

The book was gestating in my mind for several years, but I didn’t know what its shape until the past year or so; I knew I wanted to write a writing guide — one that balanced the ritualistic with the pragmatic and every day, one that used writing as a form of magic. More than using the occult in order to generate writing, it’s about using writing to make your life more magical.

It starts with the word and ends with the word.

It’s deeply rooted in recovering from pain and trauma. When I was younger, the number one thing that got me through times of extreme trauma (family separation, foster care, CPTSD, financial instability, chronic illness) was writing. Writing gave me my voice back. It was a tool for reclamation. But more so, it was a tool for joy, creativity, and empowerment.

The ability to write is a privilege for many of us, but it’s also a free tool that can help save us. I’ve seen writing help women in domestic shelters, college students move through self-esteem issues, and incarcerated individuals tell their story. It is something sacred in itself because with our words we are taking nothing and making it into something.

So I wanted to design a gentle but effective book that people — especially any marginalized community — could use to tap into their truth and self, in a way that felt right for them. It’s guided, but it allows space for reinterpretation and individuality so that anyone can tap in.

Is it similar to Light Magic for Dark Times?

It is, and it’s not. Like Light Magic for Dark Times, it is grounded in accessibility and inclusivity. It also offers different (but looser) chapter focuses, like manifestation, mindfulness, healing, conjuring your voice, creating a grimoire, and more.

Unlike Light Magic for Dark Times, it provides a much deeper dive in terms of the rituals and the writing prompts, and it’s filled with poetry and quotes to meditate on. It’s also much more about the process of long-term self-exploration (and excavation!) than about quick, one-off rituals for different purposes. I think the two actually pair super well together!

What are your beliefs?

I’m secular (for lack of a better, more nuanced word), so I don’t work with or believe in gods, goddesses, angles or other deities. However, I work closely with the natural world (especially the power and energy of water), shadow work, energy, archetypes, and symbols. For example, I see the elements as powerful tools, offering lessons and glimpses of the purity of aliveness — and I see the astrological signs as symbols of the human condition.

When does the book come out?

It’s born on April 21, so it’s a Taurus! But let’s be honest — it was finalized and sent to the printer during Scorpio season. It’s very much a Scorpio book — it’s dark, intense, powerful, and transformative. But, like a Taurus, it wants to find beauty, comfort, and artistry. And because it comes out in the Spring, it’s a great way to kick off the new year with energy, creation, and rebirth.

People are already saying some really kind things about it, and it’s included in a few Most Anticipated lists, like in Cunning Folk and over at Patheos by Mat Auryn.

PREORDER THE MAGICAL WRITING GRIMOIRE NOW!

If you do, send preorder proof of purchase to magicalwriting@quarto.com and you’ll receive downloadable prompts and magical poetry to power up your magic.

PS: Follow the book’s journey on Instagram at @Ritual_Poetica.

Body Ritual: Journal Prompts for Chronic Illness Exploration

BY LISA MARIE BASILE

Body Ritual is Lisa Marie Basile's column about wellness, chronic illness and finding healing and autonomy in ritual. You can follow her on Instagram for more on this topic.

If you live with a chronic illness, or if you love someone who has one, you know the delicate balancing act it requires. Living on that liminal precipice, between doing just enough and doing too much, requires an almost spiritual focus. And it’s tiring. I know, as I have ankylosing spondylitis, a degenerative, incurable spinal disease.

Who we feel we are within our minds is not always what our bodies reflect. And sometimes, that very lack of reconciliation rewires us. We start to believe we cannot, are not, will not.

We can, we are, and we will embrace the wholeness of our limitations and our magic. It doesn’t matter if people want us to stay quiet, go away, or stop complaining. We have a right to explore what it means to experience life as we do.

Stigma, lack of education, and fear make it hard to exist in a body that exists on the margins. Sometimes all the noise and suffering keeps us at a distance from ourselves. We often are so tired from the pain or insomnia or anxiety that we smile and pretend everything is okay. We sometimes allow ourselves to be taken advantage of just so we can seem “normal.” We push the limits of our bodies and lose grip on our boundaries. Sometimes, we get through the day, and that’s it. Sometimes it’s hard to feel empowered, to feel enough, to feel that we can and are and will.

The deep and important work that goes into healing the trauma of illness is often ignored. Instead, we focus on the day to day needs. We keep our heads above the water — but the secret is that we must become the sea.

I remember one of the first days many years ago when I realized that my body wasn't working the way it was supposed to. I was doing something simple, something that should've been innate. . Climbing on a bike, I thought that my hips were off, almost as if I was completely out of alignment. The best example I can give is when your car's axle is off and it continuously steers toward the left or to the right. There was no center, no feeling of steadiness, almost as if I could split in half or split into thirds and each part of me would fall to pieces in different directions. . My #AnkylosingSpondylitis (an #autoimmune or immune-mediated, incurable, degenerative spinal disease) deeply affects my hips, which is pretty ironic because I spent many years hating them for being so wide. Because society. Because magazines. Sometimes I wonder if I poured all of my negative energy into my body, making myself sick, as if I casted a spell - but I *know* that that is not the case. . Regardless, I try to treat my body with love and respect these days - I love my hips -and I try to see those situations in which I cannot do something or cannot do something comfortably, with compassion. I am always in the pool, where I feel I am larger than life, able to move fluidly with the lower impact, made stronger by water's sneaky resistance. But there are days when I want to crawl into bed and hide forever. Sometimes I win, sometimes it does. It's a process. It is my process. . Movement is integral to my life, it is ritual. It is a song. It is the ONLY thing keeping my spine from fusing; I am literally running for my life. But it can also be painful. . So sometimes I use devices and tools to make my life a little bit easier, and I wrote all about that for @healthline - check it out in my bio. https://bit.ly/2Hw5O2q

134 Likes, 8 Comments - lisa marie basile (@lisamariebasile) on Instagram: "I remember one of the first days many years ago when I realized that my body wasn't working the way..."

Recently I decided to go inward and empower myself to make time and space for my voice and needs as someone with chronic illness. Instead of trying to blend in or assure everyone that, “I’m fine, really,” I stared down into visit the abyss. I decided to take my time, for no reason but my own needs, and look my chronic illness in its eyes.

I cut through the noise and the stigma and the denial. My body, alight and in focus.

To do this, I made a list of chronic illness journal prompts and chose a beautiful journal strictly for these questions (or you may want to type these out or dictate your answers).

So, I wrote down several questions in my journal, and attempted to answer them. At times I answered one a day. Sometimes I answered several in one go. The important thing is that you take the time to be honest with yourself.

What I learned from answering the below questions astonished me; I was able to advocate better for my needs, recognize and make space for joy and gratitude, and find the parts of myself, like glass shards, I thought I’d lost. I didn’t lose them, it turns out. They simply changed form.

Chronic Illness Journal Prompts

• Who am I without my chronic illness?

• Who am I with my chronic illness?

• How did I change when I was diagnosed?

• How did I not change when diagnosed?

• How is my pain level today? How is my fatigue?

• Are my basic needs met? How can I facilitate this?

• What positive thing have I learned about myself while actively experiencing symptoms or side effects?

• What negative thing have I learned about myself while actively experiencing symptoms or side effects?

• What do I do during periods of remission?

• What do I do or feel when I’m in a flare-up?

• Are there any ways at all to bridge the gap between feeling good and not feeling good?

• How do others make me feel about my chronic illness?

• Who understands my illness and supports me in my experience of it?

• How can I help others understand my illness?

• What do I not feel comfortable explaining about my illness?

• Where are my boundaries?

• Where can I be more receptive or open? Is it in receiving love? Is it in talking about my needs?

• How do my finances play into my illness?

• Are there areas in which I am privileged and thus, have gratitude?

• Are there community resources or other resources I can tap into for help?

• How does my race, gender, or educational background impact my experience of chronic illness?

• How does my illness impact my job?

• How does my illness impact my social and/or sex life?

• Are there other intersecting issues that impact my chronic illness?

• What do I love about my body?

• What do I need to feel happy on a day to day basis?

• What do I need to feel sustainably happy in the long term?

• Among the things I need, which do I have?

• What are three things I am thankful for right now, in this very instance?

• If I am not happy, what is in my power to change that?

• What work — no matter how seemingly ‘small’ — can I do to advocate for or contribute the wellness of others who may be suffering? Would this feel gratifying?

• What gives me hope?

Also read:

BODY RITUAL: 12 VERY REAL THINGS I LEARNED ABOUT CHRONIC ILLNESS

BODY RITUAL: GRATITUDE MAGIC

AT THE INTERSECTION OF CHRONIC ILLNESS & RITUAL

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Lisa Marie Basile is a poet, essayist and editor living in New York City. She's the founding editor of Luna Luna Magazine, an editor at Ingram’s Little Infinite, and co-host for the podcast, AstroLushes. Most recently, she is the author of LIGHT MAGIC FOR DARK TIMES (Quarto Publishing/Fair Winds Press), a collection of practices and rituals for intentional and magical living, as well as a poetry collection, NYMPHOLEPSY . Her second book of nonfiction, WORDCRAFT, will be published by Quarto/Fair Winds Press in April 2020. It explores the use of writing as ritual and catharsis. Her essays and other work can be found in The New York Times, Chakrubs, Catapult, Narratively, Sabat Magazine, Refinery 29, Healthline, Entropy, Bust, Bustle, The Establishment, Hello Giggles, Ravishly, and more. She studied English and psychology as an undergraduate at Pace University, and received a Masters in writing from NYC’s The New School. Want to learn more? She’s been featured at Amy Poehler’s Smart Girls, HelloGiggles, The Cools, and more.