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delicious new poetry
Writing Prompts for Threshold Times
September 4, 2026
Writing Prompts for Threshold Times
September 4, 2026
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September 4, 2026
'come lie by me in the pasture' — poetry by Renee Kalagayan
September 3, 2026
'come lie by me in the pasture' — poetry by Renee Kalagayan
September 3, 2026
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September 3, 2026
'In this world I kept happening' — poetry by Oladejo Abdullah Feranmi
September 3, 2026
'In this world I kept happening' — poetry by Oladejo Abdullah Feranmi
September 3, 2026
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September 3, 2026
'the azaleas all make gruel out of me' — poetry by Anya Johanna DeNiro
September 3, 2026
'the azaleas all make gruel out of me' — poetry by Anya Johanna DeNiro
September 3, 2026
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September 3, 2026
'silk and rivers' — poetry by Zavi Kang Engles
September 3, 2026
'silk and rivers' — poetry by Zavi Kang Engles
September 3, 2026
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September 3, 2026
'death and a mountain view' — poetry by Emily Brandt
September 3, 2026
'death and a mountain view' — poetry by Emily Brandt
September 3, 2026
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September 3, 2026
'the incense of my bed chamber ' — poetry by Katja Jackson
September 3, 2026
'the incense of my bed chamber ' — poetry by Katja Jackson
September 3, 2026
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September 3, 2026
'bruises confettied as raspberries' — poetry Chelsea Fonden
September 3, 2026
'bruises confettied as raspberries' — poetry Chelsea Fonden
September 3, 2026
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September 3, 2026
'you were obsessed. a monster.' — poetry by Kathleen Hellen
September 3, 2026
'you were obsessed. a monster.' — poetry by Kathleen Hellen
September 3, 2026
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September 3, 2026
'Seas of her marooned organs' — poetry by Shon Mapp
September 3, 2026
'Seas of her marooned organs' — poetry by Shon Mapp
September 3, 2026
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September 3, 2026
'a ghost house of Sicily' — poetry by Edvige Giunta
September 3, 2026
'a ghost house of Sicily' — poetry by Edvige Giunta
September 3, 2026
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September 3, 2026
'Are the clouds full of well-water?' — poetry by Johanna E. Hall
September 3, 2026
'Are the clouds full of well-water?' — poetry by Johanna E. Hall
September 3, 2026
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September 3, 2026
'seals her-self in the confession box' — poetry by Spencer Keene
September 3, 2026
'seals her-self in the confession box' — poetry by Spencer Keene
September 3, 2026
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September 3, 2026
'bloody with sunset' — poetry by Will Cordeiro
September 3, 2026
'bloody with sunset' — poetry by Will Cordeiro
September 3, 2026
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September 3, 2026
'dream in locusts' — poetry by Vi Ly
August 15, 2026
'dream in locusts' — poetry by Vi Ly
August 15, 2026
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August 15, 2026
'plastic chair, watermelon, generator exhaust, benzene' — poetry by Hana Saad
August 15, 2026
'plastic chair, watermelon, generator exhaust, benzene' — poetry by Hana Saad
August 15, 2026
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August 15, 2026
' I am brutally killed by daffodils' — poetry by Emily Tong
August 14, 2026
' I am brutally killed by daffodils' — poetry by Emily Tong
August 14, 2026
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August 14, 2026
'violet scabbing on ankle backs' — poetry by Lexi Rosen
August 14, 2026
'violet scabbing on ankle backs' — poetry by Lexi Rosen
August 14, 2026
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August 14, 2026
'it was something more gory' — poetry by Caroline O'Connor Thomas
August 14, 2026
'it was something more gory' — poetry by Caroline O'Connor Thomas
August 14, 2026
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August 14, 2026
'I’ll accept delight’s gloom' — poetry by Hazelyn Aroian
August 14, 2026
'I’ll accept delight’s gloom' — poetry by Hazelyn Aroian
August 14, 2026
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August 14, 2026
'every hour is one long suffering' — poetry by Anne Halsey
August 14, 2026
'every hour is one long suffering' — poetry by Anne Halsey
August 14, 2026
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August 14, 2026
'a terrible countenance for what nourishes' — poetry by I Echo
August 14, 2026
'a terrible countenance for what nourishes' — poetry by I Echo
August 14, 2026
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August 14, 2026
'I am the aftermath' — poetry by Taylor Hamann Los
August 14, 2026
'I am the aftermath' — poetry by Taylor Hamann Los
August 14, 2026
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August 14, 2026
'as if landscapes verdant' — poetry by Kacey Martin
August 14, 2026
'as if landscapes verdant' — poetry by Kacey Martin
August 14, 2026
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August 14, 2026
'a wasp  giving itself to the fig' — poetry by Elaina Edwards
August 14, 2026
'a wasp giving itself to the fig' — poetry by Elaina Edwards
August 14, 2026
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August 14, 2026
'ghosts in hair follicles' — poetry by Trish hopkinson
August 14, 2026
'ghosts in hair follicles' — poetry by Trish hopkinson
August 14, 2026
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August 14, 2026
'roses among men' — poetry by Amy Thatcher
August 14, 2026
'roses among men' — poetry by Amy Thatcher
August 14, 2026
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August 14, 2026
Writing prompts for a fever dream summer
August 3, 2026
Writing prompts for a fever dream summer
August 3, 2026
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August 3, 2026
'bloodsponge rubies & wicked diamonds' — poetry by Emily Murman
August 3, 2026
'bloodsponge rubies & wicked diamonds' — poetry by Emily Murman
August 3, 2026
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August 3, 2026
'beauty is the last thing before death' — poetry by Francis de Lima
August 3, 2026
'beauty is the last thing before death' — poetry by Francis de Lima
August 3, 2026
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August 3, 2026
Patty Maher

Patty Maher

Life With An Autoimmune Disease

August 23, 2016

BY HAILI JONES

You are thirty-seven years old, but also ten, fifteen, twenty, two. Let’s start with thirty-seven then, the year containing all preceding years, the bridge to those that follow:

You judge yourself so harshly: piece of shit. Nothing you do is good enough. You want to write and not just write but have somebody read it. Complete the connection, open your arms, to welcome and also, to release. But. Then there’s: Everyone will laugh. People will hate you. Your family will disown you. The people who love you will quit loving you. The people you love will quit letting you love them. People will call you a slut. You’ll get arrested. You’ll be labeled a moral degenerate. You’ll never be able to run for office. Doctors will think you’re out for scrips. Your pain will be misinterpreted. People will come forward. You’ve got the details wrong. You can’t see deeply enough into any situation, let alone this one. Your judgment is flawed. You have blinders on. Your motivations are suspect. Very suspect. Your intentions are poor. You will do damage. You will fail. You will betray. 

You want to get the surgery, to fix that old creaky hip and get on with living. A full hip replacement. Easy-peasy. Old people get them every day. But. Then there’s: you won’t be able to walk. You’ll have to use a wheelchair. If the first surgery fails, you’ll be in a wheelchair for the rest of your life. If the revision surgery fails, you’ll be in a wheelchair for the rest of your life. They can only shiv into the bone two times.  

You have an autoimmune disease. It may or may not be polychondritis. You don’t want to let the fear destroy you, make you sicker. But then. There’s: Your face will cave in. Specifically, your nose—all the cartilage will fail and the bridge will cave in, the tell-tale saddle-nose deformity. Your ears will collapse. Shrivel up and give out. Perhaps you’ll go blind. Deaf. Maybe your heart will give out or your trachea. If the disease doesn’t kill you, the treatment will. Steroids are the only out but they leave you vulnerable to infection. More people die from infections than die of the disease, the infections secondary to treatment. Pneumonias, particularly. Various bacterial infections. Five- to ten-year horizon.

Maybe if you changed your diet.
Maybe if you changed your beauty regimen.
Maybe if you did tai chi.
Maybe if you exercised.
Maybe you took supplements.
Maybe if you believed in yourself.
Maybe if you hadn’t fucked up.
Maybe if you didn’t deserve it.
Maybe if you were a better person.
Maybe if you hadn’t fucked so-and-so.
Maybe if you hadn’t snorted/shot/smoked such-and-such.
Maybe if you wouldn’t have gotten pregnant.
Maybe if you hadn’t had that one abortion.
Maybe if you could handle stress.
Maybe if you had never experienced stress.
Maybe if you had never been vaccinated.
Maybe if your dad wouldn’t have left.
Maybe if you hadn’t gotten that part in the play.
Maybe if someone had listened to you.
Maybe if you would have listened to _____.
Maybe if you hadn’t called that girl a lesbian.
Maybe if you had been a lesbian.
Maybe if you had won that spelling bee.
Maybe if you would have won that scholarship to St. Paul’s.
Maybe if you would have applied to college sooner.
Maybe if you would have submitted your work.
Maybe if you would have worked harder.
If your work had been shit.
If your work had merit.
If you worked.
If anything about you worked. 


Haili Jones is a writer and editor living in Portland, OR. Her work has appeared in Bitch, Hip Mama, andThe Notebook: A Progressive Journal for Women & Girls with Rural and Small-Town Roots. She also performs with Mortified Portland, spreads the lit-love in her community by facilitating creative writing workshops for Write Around Portland, .

In Poetry & Prose Tags Non Fiction, Self-Criticism, Anxiety, Polychondritis, Disabilities, Mental Health, Chronic Illness, Haili Jones
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feed me poetry
Featured
'dream in locusts' — poetry by Vi Ly
Vi Ly
Vi Ly
'dream in locusts' — poetry by Vi Ly
Vi Ly
Vi Ly
Read more →
Vi Ly
Vi Ly
'plastic chair, watermelon, generator exhaust, benzene' — poetry by Hana Saad
Hana Saad
Hana Saad
'plastic chair, watermelon, generator exhaust, benzene' — poetry by Hana Saad
Hana Saad
Hana Saad
Read more →
Hana Saad
Hana Saad
' I am brutally killed by daffodils' — poetry by Emily Tong
Emily Tong
Emily Tong
' I am brutally killed by daffodils' — poetry by Emily Tong
Emily Tong
Emily Tong
Read more →
Emily Tong
Emily Tong
'violet scabbing on ankle backs' — poetry by Lexi Rosen
Lexi Rosen
Lexi Rosen
'violet scabbing on ankle backs' — poetry by Lexi Rosen
Lexi Rosen
Lexi Rosen
Read more →
Lexi Rosen
Lexi Rosen
'it was something more gory' — poetry by Caroline O'Connor Thomas
Caroline O'Connor Thomas
Caroline O'Connor Thomas
'it was something more gory' — poetry by Caroline O'Connor Thomas
Caroline O'Connor Thomas
Caroline O'Connor Thomas
Read more →
Caroline O'Connor Thomas
Caroline O'Connor Thomas
'I’ll accept delight’s gloom' — poetry by Hazelyn Aroian
Hazelyn Aroian
Hazelyn Aroian
'I’ll accept delight’s gloom' — poetry by Hazelyn Aroian
Hazelyn Aroian
Hazelyn Aroian
Read more →
Hazelyn Aroian
Hazelyn Aroian
'every hour is one long suffering' — poetry by Anne Halsey
Anne Halsey
Anne Halsey
'every hour is one long suffering' — poetry by Anne Halsey
Anne Halsey
Anne Halsey
Read more →
Anne Halsey
Anne Halsey
'a terrible countenance for what nourishes' — poetry by I Echo
I Echo
I Echo
'a terrible countenance for what nourishes' — poetry by I Echo
I Echo
I Echo
Read more →
I Echo
I Echo
'I am the aftermath' — poetry by Taylor Hamann Los
Taylor Hamann Los
Taylor Hamann Los
'I am the aftermath' — poetry by Taylor Hamann Los
Taylor Hamann Los
Taylor Hamann Los
Read more →
Taylor Hamann Los
Taylor Hamann Los
'as if landscapes verdant' — poetry by Kacey Martin
Kacey Martin
Kacey Martin
'as if landscapes verdant' — poetry by Kacey Martin
Kacey Martin
Kacey Martin
Read more →
Kacey Martin
Kacey Martin
'a wasp  giving itself to the fig' — poetry by Elaina Edwards
Elaina Edwards
Elaina Edwards
'a wasp giving itself to the fig' — poetry by Elaina Edwards
Elaina Edwards
Elaina Edwards
Read more →
Elaina Edwards
Elaina Edwards
'ghosts in hair follicles' — poetry by Trish hopkinson
Trish Hopkinson
Trish Hopkinson
'ghosts in hair follicles' — poetry by Trish hopkinson
Trish Hopkinson
Trish Hopkinson
Read more →
Trish Hopkinson
Trish Hopkinson
'roses among men' — poetry by Amy Thatcher
Amy Thatcher
Amy Thatcher
'roses among men' — poetry by Amy Thatcher
Amy Thatcher
Amy Thatcher
Read more →
Amy Thatcher
Amy Thatcher

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