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delicious new poetry
'the doors of the night open' — poetry by Juan Armando Rojas (translated by Paula J. Lambert)
Nov 29, 2025
'the doors of the night open' — poetry by Juan Armando Rojas (translated by Paula J. Lambert)
Nov 29, 2025
Nov 29, 2025
'we can be forlorn women' — poetry by Stevie Belchak
Nov 29, 2025
'we can be forlorn women' — poetry by Stevie Belchak
Nov 29, 2025
Nov 29, 2025
'I do whatever the light tells me to' — poetry by Catherine Bai
Nov 29, 2025
'I do whatever the light tells me to' — poetry by Catherine Bai
Nov 29, 2025
Nov 29, 2025
‘to kill bodice and give sacrament’ — poetry By Kale Hensley
Nov 29, 2025
‘to kill bodice and give sacrament’ — poetry By Kale Hensley
Nov 29, 2025
Nov 29, 2025
'Venetian draped in goatskin' — poetry by Natalie Mariko
Nov 29, 2025
'Venetian draped in goatskin' — poetry by Natalie Mariko
Nov 29, 2025
Nov 29, 2025
'the long sorrow of the color red' — centos by Patrice Boyer Claeys
Nov 28, 2025
'the long sorrow of the color red' — centos by Patrice Boyer Claeys
Nov 28, 2025
Nov 28, 2025
'Flowers are the offspring of longing' — poetry by Ellen Kombiyil
Nov 28, 2025
'Flowers are the offspring of longing' — poetry by Ellen Kombiyil
Nov 28, 2025
Nov 28, 2025
'punish or repent' — poetry by Chris McCreary
Nov 28, 2025
'punish or repent' — poetry by Chris McCreary
Nov 28, 2025
Nov 28, 2025
'long, dangerous grasses' — poetry by Jessica Purdy
Nov 28, 2025
'long, dangerous grasses' — poetry by Jessica Purdy
Nov 28, 2025
Nov 28, 2025
'gifting nighttime honey' — poetry by Nathan Hassall
Nov 28, 2025
'gifting nighttime honey' — poetry by Nathan Hassall
Nov 28, 2025
Nov 28, 2025
'A theory of pauses' — poetry by Jeanne Morel and Anthony Warnke
Nov 28, 2025
'A theory of pauses' — poetry by Jeanne Morel and Anthony Warnke
Nov 28, 2025
Nov 28, 2025
'into the voluminous abyss' — poetry by D.J. Huppatz
Nov 28, 2025
'into the voluminous abyss' — poetry by D.J. Huppatz
Nov 28, 2025
Nov 28, 2025
'an animal within an animal' — a poem by Carolee Bennett
Nov 28, 2025
'an animal within an animal' — a poem by Carolee Bennett
Nov 28, 2025
Nov 28, 2025
‘in the glitter-open black' — poetry by Fox Henry Frazier
Oct 31, 2025
‘in the glitter-open black' — poetry by Fox Henry Frazier
Oct 31, 2025
Oct 31, 2025
'poet as tarantula,  poem as waste' — poetry by  Ewen Glass
Oct 31, 2025
'poet as tarantula, poem as waste' — poetry by Ewen Glass
Oct 31, 2025
Oct 31, 2025
'my god wearing a body' — poetry by Tom Nutting
Oct 31, 2025
'my god wearing a body' — poetry by Tom Nutting
Oct 31, 2025
Oct 31, 2025
'Hours rot away in regalia' — poetry by Stephanie Chang
Oct 31, 2025
'Hours rot away in regalia' — poetry by Stephanie Chang
Oct 31, 2025
Oct 31, 2025
'down down down the hall of mirrors' — poetry by Ronnie K. Stephens
Oct 31, 2025
'down down down the hall of mirrors' — poetry by Ronnie K. Stephens
Oct 31, 2025
Oct 31, 2025
'Grew appendages, clawed towards light' — poetry by Lucie Brooks
Oct 31, 2025
'Grew appendages, clawed towards light' — poetry by Lucie Brooks
Oct 31, 2025
Oct 31, 2025
'do not be afraid' — poetry by Maia Decker
Oct 31, 2025
'do not be afraid' — poetry by Maia Decker
Oct 31, 2025
Oct 31, 2025
'The darkened bedroom' — poetry by Jessica Purdy
Oct 31, 2025
'The darkened bedroom' — poetry by Jessica Purdy
Oct 31, 2025
Oct 31, 2025
'I am the body that I am under' — poetry by Jennifer MacBain-Stephens
Oct 31, 2025
'I am the body that I am under' — poetry by Jennifer MacBain-Stephens
Oct 31, 2025
Oct 31, 2025
goddess energy.jpg
Oct 26, 2025
'Hotter than gluttony' — poetry by Anne-Adele Wight
Oct 26, 2025
Oct 26, 2025
'As though from Babel' — poetry by Fox Henry Frazier
Oct 26, 2025
'As though from Babel' — poetry by Fox Henry Frazier
Oct 26, 2025
Oct 26, 2025
'See my wants' — poetry by Aaliyah Anderson
Oct 26, 2025
'See my wants' — poetry by Aaliyah Anderson
Oct 26, 2025
Oct 26, 2025
'black viper dangling a golden fruit' — poetry by Nova Glyn
Oct 26, 2025
'black viper dangling a golden fruit' — poetry by Nova Glyn
Oct 26, 2025
Oct 26, 2025
'It would be unfair to touch you' — poetry by grace (ge) gilbert
Oct 26, 2025
'It would be unfair to touch you' — poetry by grace (ge) gilbert
Oct 26, 2025
Oct 26, 2025
'Praying in retrograde' — poetry by Courtney Leigh
Oct 26, 2025
'Praying in retrograde' — poetry by Courtney Leigh
Oct 26, 2025
Oct 26, 2025
'To not want is death' — poetry by Letitia Trent
Oct 26, 2025
'To not want is death' — poetry by Letitia Trent
Oct 26, 2025
Oct 26, 2025
'Our wildness the eternal now' — poetry by Hannah Levy
Oct 26, 2025
'Our wildness the eternal now' — poetry by Hannah Levy
Oct 26, 2025
Oct 26, 2025
Patty Maher

Patty Maher

Life With An Autoimmune Disease

August 23, 2016

BY HAILI JONES

You are thirty-seven years old, but also ten, fifteen, twenty, two. Let’s start with thirty-seven then, the year containing all preceding years, the bridge to those that follow:

You judge yourself so harshly: piece of shit. Nothing you do is good enough. You want to write and not just write but have somebody read it. Complete the connection, open your arms, to welcome and also, to release. But. Then there’s: Everyone will laugh. People will hate you. Your family will disown you. The people who love you will quit loving you. The people you love will quit letting you love them. People will call you a slut. You’ll get arrested. You’ll be labeled a moral degenerate. You’ll never be able to run for office. Doctors will think you’re out for scrips. Your pain will be misinterpreted. People will come forward. You’ve got the details wrong. You can’t see deeply enough into any situation, let alone this one. Your judgment is flawed. You have blinders on. Your motivations are suspect. Very suspect. Your intentions are poor. You will do damage. You will fail. You will betray. 

You want to get the surgery, to fix that old creaky hip and get on with living. A full hip replacement. Easy-peasy. Old people get them every day. But. Then there’s: you won’t be able to walk. You’ll have to use a wheelchair. If the first surgery fails, you’ll be in a wheelchair for the rest of your life. If the revision surgery fails, you’ll be in a wheelchair for the rest of your life. They can only shiv into the bone two times.  

You have an autoimmune disease. It may or may not be polychondritis. You don’t want to let the fear destroy you, make you sicker. But then. There’s: Your face will cave in. Specifically, your nose—all the cartilage will fail and the bridge will cave in, the tell-tale saddle-nose deformity. Your ears will collapse. Shrivel up and give out. Perhaps you’ll go blind. Deaf. Maybe your heart will give out or your trachea. If the disease doesn’t kill you, the treatment will. Steroids are the only out but they leave you vulnerable to infection. More people die from infections than die of the disease, the infections secondary to treatment. Pneumonias, particularly. Various bacterial infections. Five- to ten-year horizon.

Maybe if you changed your diet.
Maybe if you changed your beauty regimen.
Maybe if you did tai chi.
Maybe if you exercised.
Maybe you took supplements.
Maybe if you believed in yourself.
Maybe if you hadn’t fucked up.
Maybe if you didn’t deserve it.
Maybe if you were a better person.
Maybe if you hadn’t fucked so-and-so.
Maybe if you hadn’t snorted/shot/smoked such-and-such.
Maybe if you wouldn’t have gotten pregnant.
Maybe if you hadn’t had that one abortion.
Maybe if you could handle stress.
Maybe if you had never experienced stress.
Maybe if you had never been vaccinated.
Maybe if your dad wouldn’t have left.
Maybe if you hadn’t gotten that part in the play.
Maybe if someone had listened to you.
Maybe if you would have listened to _____.
Maybe if you hadn’t called that girl a lesbian.
Maybe if you had been a lesbian.
Maybe if you had won that spelling bee.
Maybe if you would have won that scholarship to St. Paul’s.
Maybe if you would have applied to college sooner.
Maybe if you would have submitted your work.
Maybe if you would have worked harder.
If your work had been shit.
If your work had merit.
If you worked.
If anything about you worked. 


Haili Jones is a writer and editor living in Portland, OR. Her work has appeared in Bitch, Hip Mama, andThe Notebook: A Progressive Journal for Women & Girls with Rural and Small-Town Roots. She also performs with Mortified Portland, spreads the lit-love in her community by facilitating creative writing workshops for Write Around Portland, .

In Poetry & Prose Tags Non Fiction, Self-Criticism, Anxiety, Polychondritis, Disabilities, Mental Health, Chronic Illness, Haili Jones
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Featured
‘in the glitter-open black' — poetry by Fox Henry Frazier
‘in the glitter-open black' — poetry by Fox Henry Frazier
'poet as tarantula,  poem as waste' — poetry by  Ewen Glass
'poet as tarantula, poem as waste' — poetry by Ewen Glass
'Hours rot away in regalia' — poetry by Stephanie Chang
'Hours rot away in regalia' — poetry by Stephanie Chang
'down down down the hall of mirrors' — poetry by Ronnie K. Stephens
'down down down the hall of mirrors' — poetry by Ronnie K. Stephens
'Grew appendages, clawed towards light' — poetry by Lucie Brooks
'Grew appendages, clawed towards light' — poetry by Lucie Brooks
'do not be afraid' — poetry by Maia Decker
'do not be afraid' — poetry by Maia Decker
'The darkened bedroom' — poetry by Jessica Purdy
'The darkened bedroom' — poetry by Jessica Purdy
'I am the body that I am under' — poetry by Jennifer MacBain-Stephens
'I am the body that I am under' — poetry by Jennifer MacBain-Stephens
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